Many of you know what has been going on with Ellis'
poor little noggin, but for those of you who don't, (and have no idea what
plagiocephaly is) I will quick explain...
Plagiocephaly, know as "flat head
syndrome" is a condition that causes a
baby's head to have a flat spot or be misshapen. The most common form is
positional plagiocephaly. It occurs when a baby's head develops a flat spot due
to pressure on that area. Babies are vulnerable because their skull is soft and
pliable when they're born. Since 1992, when the rule of thumb was changed from putting baby on their tummy to sleep to putting them on their back, plagiocephaly has become rather common.
Ellis' head isn't as much flat as it
is misshapen. Very early on, Ellis started favoring her right side,
always sucking on the fingers on her right hand, and sleeping with her head to
the right. We started to notice that her head was a bit asymmetrical and looking like
(but not nearly as bad as) the image below.
We bought her a Noggin Nest for her car seat and crib -
which I DO think actually helped a little. We avoided lying her on her back as
much as possible by putting her on her tummy or in her bouncer when we weren't
holding her. We tried swaddling her right arm down so she would, hopefully, suck
on her left hand instead of her right. We tried putting a sock over her right
hand when she slept - she would just suck on her hand through the sock and it
would just be wet and cold in the morning. We tried putting a light up
sound toy on the side of her crib to get her to look left... basically, WE
TRIED EVERYTHING. The thing is, when you are a baby, you do what you want.
We talked to our pediatrician about our concerns
with her head at both her four and six month appointments and she said she
didn't think it was anything to worry about. She said she didn't see any
asymmetry in her face, so she thought she was fine. After debating it for
a while, we finally decided we just wanted to get another opinion from a
specialist, just to make sure.
Last Friday, we went to the Dean Head Shaping
Clinic. We were fully expecting them to say they thought she was fine and
she would grow out of it. Unfortunately, that is not what we were told.
The physical therapist took a bunch of measurements of her face and her
head and did some tests looking at her range of motion with her neck.
Because she always favors her right, the muscle on the right side of her
neck is shorter than her left, a condition called Torticollis.
To correct this, we are doing special exercises with her to strengthen
and stretch her right neck muscle.
After taking the measurements, the PT told us that
Ellis was at the top of the "grey area" of needing a DOC band (a
helmet) to correct the shape of her head. Now you might be wondering...
Why do we care so much about the shape of her
head? She will have hair and no one will even notice!
This is why - The shape of her head can affect the
symmetry of her face. The opening of her left eye is a tiny bit smaller
than her right, her cheeks are a little asymmetrical, and her right ear is a little further back and lower than the left. It is
not extremely noticeable, but you can tell if you really look for it. We are
also talking about a situation where both mom and dad have a bit of OCD - ok, a
lot of OCD. The last thing we want is for Ellis to grow up and have a
lopsided face! :( I had adult braces (second time having them) b/c
I had such a complex about my teeth not being perfect. We do not want her
growing up having a complex about her face - something that could never be
fixed! That is why we are catching it now. It can be corrected up
until 18 months b/c the head is still growing.
The negatives:
• It costs $3,300 ($2,600 if we pay
it in full)
• Our health insurance doesn't cover
a penny of it.
• She has to wear it for 23 hours a
day for 3-4 months
• We have to bring her in every two
weeks for adjustments to the helmet.
The positives:
• The problem CAN be corrected
• It isn't a very severe case
• She is a perfectly healthy baby besides
• I can paint and decorate her DOC band! WOO
HOO!
• She will be wearing it in the winter months - it
would be so hot in the summer!
• She will be wearing it while she is learning to
crawl and maybe even walk so she we be protected from bumps and falls. (ok, this is stretching it a bit, but still a bright spot! ;)
So after talking it over, Logan and I decided we
wanted to go through with the DOC band. On Wednesday we both took Ellis back to
the head shaping clinic to have her mold created for her cast. The mold will
be sent into the DOC band company and we will have her band in about 2 weeks.
Here are some pictures of the procedure:
I was pretty upset about the news at first, but I have come to realize there are much worse situations we could be in. Even though her head is a little misshapen, she is still a healthy and happy baby. There are children all over the world dying from starvation and I am boo hooing over my child needing a helmet! !? C'mon Katie! Pull it together!! It is ALWAYS good to keep life in perspective. My mom told me to get used to it and this is just a bump along the way. We will probably need to get her braces some day and of course, send her to college. This is just one tiny expense in the grand scheme of things. I will say one thing though... SHE BETTER HAVE THE MOST PERFECTLY ROUND LITTLE MELON AFTER THIS! :)
This is what the DOC band "helmet" will look like:
